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The Donation Page of Kelly Alfieri
In honor of Christopher Repass
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Join me in my efforts to support Christopher and Friedreich's Ataxia Research Alliance (FARA)!
This is my cousin's son, Christopher Repass. He is a funny, sweet, handsome, 13-year-old boy. On October 7, 2009, his life and the lives of his family were turned upside down when he was diagnosed with Friedreich's Ataxia. FA is a rare disease that is inherited and affects the heart and muscles. For a 13-year-old boy, Christopher has been through more than most of us will ever go through in a lifetime. He has had to adapt to using braces and then a walker. Many days he is bullied at school because of the way he walks.
Everyday is a struggle for Christopher. His muscles are very uncooperative in the morning and it is often difficult to get showered and dressed. It's a challenge for him to walk to the bus and a struggle for him to get from class to class. Christopher is to the point where he has to use a wheelchair to walk more than 50 feet. As you can see, Christopher is a happy kid who is willing to fight. We need to fight FA.
I joined Team FARA to redefine what is possible when we work together towards a common goal- treatments and a cure for FA. Join us in supporting the urgent pace of the research. Donate. Together we will cure FA!